Just over 15 years ago, if you got diagnosed with MS, there were no disease modifying drugs you could get on to help you manage the condition.  Fast forward 15 years and there are now numerous drugs that newly diagnosed MS patients can choose from.  Although the drugs cannot cure you, the research has proven that they can halt the progression of the condition and in some instances reduce the relapse rate of up to 30+% per annum.  The bottom line is very simple in my view - If there is a drug out there that can help the MS community live their lives a little bit more comfortably, then i support this.

In July this year I was invited to speak at a medical conference in Austria.  The room was full with over 500 neurologists and pharma representatives in attendance and the speakers included over twenty of the top medical doctors and neurologists from across the world, and then yours truly.  The one thing i took from the conference was a talk by a leading neuro in Europe.  He advised the room that there are a lot of new drugs currently going through trials right now and due to be commissioned shortly.  He also stated that unfortunately there are gong to be a lot of new side effects for the patients who sample the newer treatments, as thats all part of the medical journey.  

I am very much one for breaking ground in life, medicine and science, and it goes with the territory if you are trying to come up with new innovative treatments, then the cost of this will be the side effects of the new treatments.  I would urge caution in this regard to the pharmas, and hopefully they are doing all they can to eradicate this challenge.  Its hard enough living every minute of every day with MS never mind chemicals upsetting the body further.

The evening after the conference i had the pleasure of joining the company of a number of pharma reps and a few neurologists to converse about life, family and the world.  One thing that i can share with you is the absolute passion and commitment the medical professional appear to have in regards to solving the MS challenge.  This was very humbling for me from a patients perspective.

One of the top neuros i was speaking with advised me that it was his view that they would get to the bottom of MS by 2025 - thats just over 10 years.  The chap i was discussing this with comes from an informed position and is highly regarded in his field by his peers.  To hear this from him cannot be disguarded lightly and gives me great hope for the future for the MS family.

So yes, we are getting closer to working out MS, and I am looking forward to the day that MS stands for MYSTERY SOLVED #MS


Conor DevineComment